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Giving Thanks to the Huntington's Disease Family Community for Advancing Research

Giving Thanks to the Huntington's Disease Family Community for Advancing Research

At this time of giving, we want to give thanks to you, the Huntington’s disease (HD) community, for all you have done for HD research, bringing us closer to medicines which will one day slow or halt HD.

HDBuzz EditorsDecember 03, 2024

Self-determination on the HD journey: the role of Advanced Care Planning

Self-determination on the HD journey: the role of Advanced Care Planning

Advanced Care Planning is a tool that can allow people living with Huntington’s disease to compassionately engage with loved ones about their future care, taking thoughtful steps at their own pace while they’re able, to ensure their wishes are met.

Dr Tamara MaiuriDecember 02, 2024

2024 HDBuzz Prize: Beyond nerve cells – who are the other players in the HD brain?

2024 HDBuzz Prize: Beyond nerve cells – who are the other players in the HD brain?

We're proud to announce Jenny Lange as a 2024 HDBuzz Prize winner! Our brains are made up of many types of cells that play different roles in the changes caused by HD. This study dives into a star-shaped cell called astrocytes and their role in HD.

Dr Jenny LangeNovember 25, 2024

Face-to-face: Huntington’s disease families are heard by the FDA

Face-to-face: Huntington’s disease families are heard by the FDA

The HDSA recently coordinated a meeting between Huntington’s disease families and the US regulatory agency that approves medicines, to amplify the community’s voice and help move us toward treatments.

Dr Sarah HernandezNovember 22, 2024

The dust has settled: Sage’s dalzanemdor won’t advance for cognitive impairment

The dust has settled: Sage’s dalzanemdor won’t advance for cognitive impairment

Changes in thinking, learning, and memory are some of the most distressing and impactful in Huntington’s disease. Sage Therapeutics was advancing their drug dalzanemdor to treat these symptoms, but unfortunately this program will be halted.

Dr Sarah HernandezNovember 20, 2024

We are not alone, and are seeing more RED

We are not alone, and are seeing more RED

Scientists have found more people have the genetic changes that underlie repeat expansion diseases, like HD, than previously thought. This new data tells doctors to consider expansion diseases more when diagnosing people with neurological symptoms.

Dr Ray TruantNovember 18, 2024

Huntington Study Group (HSG) Conference 2024 – Day 3

Huntington Study Group (HSG) Conference 2024 – Day 3

Read updates from clinical trials and scientific research on Huntington’s disease from Day 3 of the 2024 Huntington Study Group conference.

Dr Leora Fox and Dr Sarah HernandezNovember 13, 2024

Huntington Study Group (HSG) Conference 2024 – Day 1

Huntington Study Group (HSG) Conference 2024 – Day 1

Read updates from clinical trials and scientific research on Huntington’s disease from Day 1 of the 2024 Huntington Study Group conference #HSG2024

Dr Leora Fox and Dr Sarah HernandezNovember 12, 2024

Huntington Study Group (HSG) Conference 2024 – Day 2

Huntington Study Group (HSG) Conference 2024 – Day 2

Read updates from clinical trials and scientific research on Huntington’s disease from Day 2 of the 2024 Huntington Study Group conference

Dr Sarah Hernandez and Dr Leora FoxNovember 12, 2024

2024 HDBuzz Prize: Social Skills - The Hidden Gem in Improving Quality of Life for People with Huntington's disease?

2024 HDBuzz Prize: Social Skills - The Hidden Gem in Improving Quality of Life for People with Huntington's disease?

We're proud to announce Molly Gracey as a 2024 HDBuzz Prize winner! Could social skills be the secret ingredient to a better quality of life in people with #HuntingtonsDisease? Clues suggest these 'hidden gems' impact #QualityOfLife in HD.

Maille (Molly) GraceyNovember 04, 2024

2024 HDBuzz Prize: Thinking beyond therapies - it’s time to consider racial disparity in HD care and research

2024 HDBuzz Prize: Thinking beyond therapies - it’s time to consider racial disparity in HD care and research

We're proud to announce Dr. Zanna Voysey as a 2024 HDBuzz Prize winner! She shares a new study that details racial disparities in HD care and research. Addressing this could improve the lives of people living with HD in the here-and-now.

Dr Zanna VoyseyOctober 28, 2024

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