Huntington’s disease research news. In plain language. Written by scientists. For the global HD community.
Drs Rachel Harding and Tam Maiuri are taking a leap of faith to make discoveries in Huntington’s Disease (HD) research swift and open to all. They are publishing their lab notes on fundamental HD research online in real time, at the risk of losing credit for their work. As a result, they hope to speed the path of discovery to more effective HD treatments.
We’re pleased to announce the 2013 HDBuzz Prize, an opportunity for early-career Huntington’s disease researchers to get involved in communicating HD science to the global community, see their work published here and win US$500 in Amazon vouchers!
Is access to 'predictive' genetic testing for Huntington's disease a problem? Research from University of British Columbia researchers suggests that it is, at least in Canada. We explore the problem and possible solutions.
A recent press release from the University of New Orleans (UNO) claims its researchers have discovered a "way to delay symptoms of deadly Huntington's disease". Music to the ears of HD family members everywhere. But does the science live up to the hype? The short answer, sadly, is no.
We're pleased to announce the HDBuzz prize, an opportunity for early-career Huntington's disease researchers to get involved in communicating HD science to the global community, see their work published here and win real human money!
Huntington's disease may be incurable - but it's far from untreatable. But the care patients receive from professionals can be inconsistent. Now, a series of recently published internationally-agreed guidelines will help 'level up' everyone's care to the best standards.
A bright day dawns for young people affected by Huntington's disease as HDYO, the Huntington's Disease Youth Organization, is launched. Created for young people, by young people, HDYO represents nothing less than a generation of people affected by HD, standing united to fight the disease together.
2011 was a year of big events, and the world of Huntington's disease was no exception. From the launch of HDBuzz and the growth of the global HD community to intriguing progress in basic science and a certainty that effective treatments are closer than ever. Our 2011 review looks back - and forward.
Huntington’s disease is relatively rare. In western countries, estimates of the number of people with symptoms of HD are about 1 in 20,000 people. It's been suggested that HD is even rarer in China, but of course China is a huge place. HDBuzz attended the launch of the new Chinese HD Network to learn whether this is true, and what a Chinese HD Network could mean for HD patients around the world.