This #HDGratitudeDay, we’re going beyond science & getting to the heart of what drives this community—the people. Learn how Factor-H is bringing hope & humanity to the most vulnerable within the HD community, and join us in amplifying their message.
In honor of #HDGratitudeDay, happening today, March 23, 2025, HDBuzz interviewed Dr. Ignacio Muñoz-Sanjuán, President and Founder of Factor-H—a nonprofit dedicated to supporting Huntington’s disease families in Latin America.
HDYO released data from recent surveys of the global HD community. Learn more about the findings and how surveys can help shape the future of HD care and support.
As we begin 2025, we look back on all of the Huntington’s disease research news and progress the field has made in the last 12 months.
Advanced Care Planning is a tool that can allow people living with Huntington’s disease to compassionately engage with loved ones about their future care, taking thoughtful steps at their own pace while they’re able, to ensure their wishes are met.
The HDSA recently coordinated a meeting between Huntington’s disease families and the US regulatory agency that approves medicines, to amplify the community’s voice and help move us toward treatments.
September 25th is Ataxia Awareness Day, so HDBuzz is highlighting the connections between HD and Ataxia research. Learn about how these fields have historically grown in parallel and informed one another.
May 7 is Brain Donation Awareness Day. Today we highlight the selfless donation that many HD families have made, sending our gratitude, sharing research updates made with those precious brains, and detailing resources for brain donation.
The HDBuzz team sat down (virtually) for an in depth Q&A session with the team at Roche to answer questions about tominersen and the recent halting of the GENERATION-HD1 trial