Articles with the topic: care

Self-determination on the HD journey: the role of Advanced Care Planning

Self-determination on the HD journey: the role of Advanced Care Planning

Advanced Care Planning is a tool that can allow people living with Huntington’s disease to compassionately engage with loved ones about their future care, taking thoughtful steps at their own pace while they’re able, to ensure their wishes are met.

Dr Tamara MaiuriDecember 02, 2024

2024 HDBuzz Prize: Thinking beyond therapies - it’s time to consider racial disparity in HD care and research

2024 HDBuzz Prize: Thinking beyond therapies - it’s time to consider racial disparity in HD care and research

We're proud to announce Dr. Zanna Voysey as a 2024 HDBuzz Prize winner! She shares a new study that details racial disparities in HD care and research. Addressing this could improve the lives of people living with HD in the here-and-now.

Dr Zanna VoyseyOctober 28, 2024

14 changes for a healthier brain

14 changes for a healthier brain

In 2019, there were ~57 million people living with dementia. By 2050, that number is expected to climb to 153 million. Changes in the 14 factors highlighted here can improve brain health and be applied to Huntington’s disease.

Dr Sarah HernandezSeptember 30, 2024

What does COVID-19 mean for Huntington’s disease families and HD research?

What does COVID-19 mean for Huntington’s disease families and HD research?

COVID-19 update: what does it mean for HD families, how does it impact HD research, and how has it changed the way science works?

Dr Sarah Hernandez and Professor Ed WildApril 06, 2020

Closing the care gap: new guidelines for HD care

Closing the care gap: new guidelines for HD care

Closing the care gap: new guidelines to help every Huntington's disease patient get great care

Professor Ed WildApril 17, 2012

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