interview
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Can’t Get You Out of My Head: The Huntington’s Disease Symptom That’s More Than Just Repetition
5 min read
Getting “stuck” on a thought, action, or conversation can be a symptom of HD—not stubbornness. New research suggests perseveration may begin earlier than previously thought and highlights the value of caregiver perspectives.
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Evolving Needs, Evolving Care: Adapting Psychological Support Across Different Stages of Huntington’s Disease
9 min read
Huntington’s disease affects more than movement: it also has a major impact on mental health. Researchers explore why psychological care matters and how it needs to be adapted across each stage of HD.
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Dancing With a Stranger: Understanding Apathy in Huntington’s Disease Through Caregivers
5 min read
Apathy in HD isn’t just “not caring.” It can affect relationships, routines, and emotional connection. A small study of caregivers reveals the heavy toll of apathy and the value of safe spaces to share experiences.
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Huntington’s Disease Heroes: A Gratitude Day Feature on Factor-H
30 min read
In honor of #HDGratitudeDay, happening today, March 23, 2025, HDBuzz interviewed Dr. Ignacio Muñoz-Sanjuán, President and Founder of Factor-H—a nonprofit dedicated to supporting Huntington’s disease families in Latin America.
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This Gratitude Day, HDBuzz Is Grateful For The Partnership Between HD Families And Scientists
10 min read
This #HDGratitudeDay, we’re going beyond science & getting to the heart of what drives this community—the people. Learn how Factor-H is bringing hope & humanity to the most vulnerable within the HD community, and join us in amplifying their message.
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Real talk: Q&A with Roche about GENERATION-HD1
18 min read
The HDBuzz team sat down (virtually) for an in depth Q&A session with the team at Roche to answer questions about tominersen and the recent halting of the GENERATION-HD1 trial
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Video feature: Huntington's disease research… in space!
12 min read
The sky's no longer the limit for HD research: HDBuzz interviews Gwen Owens, who's sending the HD protein into space!
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Interview: Alice and Nancy Wexler
10 min read
HDBuzz interviews Alice and Nancy Wexler, the sisters at the heart of the Hereditary Disease Foundation