Keeping up with HD research just got easier: Introducing the HDBuzz Trial Tracker

If you’ve tried to follow Huntington’s disease (HD) clinical trials recently, you’ll know the feeling: so many trials, so many acronyms, and so many announcements. It’s a fantastic problem to have! But it can leave us scratching our heads. One week there’s news of a trial starting, the next there’s an update, and months later you may be left wondering: Is this trial still going? Did it finish? What came next?

That’s why we’re introducing a new feature on the HDBuzz website: the HDBuzz Trial Tracker! The Trial Tracker is designed as a snapshot-style overview of HD clinical trials, helping the community see what updates we should expect next, when we should expect them, and how the growing HD trial landscape is unfolding over time.

Why we built the Trial Tracker

The number of HD clinical trials has increased dramatically in recent years. (Cue happy dance!) This is a sign of real momentum and tremendous hope for our community. But it can make staying on top of all of the announcements more challenging.

Trials start, pause, update, complete, and sometimes disappear from the news cycle altogether. Information might be scattered across conference talks, registry entries, social media posts, and press releases. And sometimes those press releases get taken down, making it difficult to find information during an “Oh, wait, wasn’t there that company testing that drug?” moment. It’s easy to miss how trials overlap, how long they actually run, or what stage they have reached at any given moment.

HDBuzz articles dive deep into the science behind individual studies and what each company has told us about their work so far. But we also heard a clear need for a way to know what should be coming next – what updates should we expect from each company on their next steps and results, and when. The Trial Tracker was built to do exactly that.

We aim to include all companies who are actively testing a drug in the clinic or who have recently completed a clinical study. Lots of companies say they will start clinical trials, but many times these don’t materialise. Clinical trials are extremely complicated and expensive endeavours with lots of hurdles to overcome to go from the lab bench to patients. We hope the Trial Tracker provides HD families with an easy, at-a-glance way to keep track of trials that are upcoming, ongoing, halted, or dissolved.

What the HDBuzz Trial Tracker is, and isn’t

The HDBuzz Trial Tracker is a shared snapshot overview of HD clinical trials. It shows which companies or academic groups are involved in a specific trial, what update we are expecting next and when that might be. The card for each company also links to the press release or source that details their disclosure of this future update. This makes it easier to understand what’s next for HD clinical trials, without needing to chase dozens of separate sources or searching internet archives.

Just as importantly, the Trial Tracker is not meant to replace detailed trial explanations. For plain-language breakdowns of what a therapy does, why a trial was designed a certain way, or how to interpret results, HDBuzz articles remain the place to go. The Trial Tracker provides the future timeline; our articles provide the context.

Many of the cards in the Trial Tracker may feel vague or are missing specific dates for when a future update is incoming, instead deferring to predicted updates coming in specific quarters or years. Companies are generally keen to manage expectations and not over-promise what they will deliver in the future, so this is often deliberate. But whatever information they do share, we will add to the tracker. 

Helping the community stay oriented

Clinical trial information can feel overwhelming, especially when updates arrive out of order or without follow-up. By laying trials out on a single tracker, we hope this helps to reduce confusion and help folks know when we should next hear scheduled updates. 

Whether you’re living with HD, at risk, a clinician, or simply following the science, the goal is the same: clarity without oversimplification.

Why timelines matter for accountability

Clinical trials rely on the time, trust, and participation of the HD community. Clear communication about timelines and progress is part of ethical research.

A visible, shared tracker makes it easier to see when updates are (or are not) shared, and when we should expect news. The Trial Tracker isn’t about judging outcomes, it’s about transparency. When timelines are clear, expectations are clearer too.

Independent, evidence-based, and always free

As with everything HDBuzz produces, the Trial Tracker is editorially independent, free to access, and uninfluenced by pharmaceutical or biotech companies. Our role is not to promote specific trials or therapies, but to help the HD community understand the research landscape as it really is – complex, evolving, and active.

A living horizon

The HDBuzz Trial Tracker will continue to be updated as new trials enter the clinical space, existing trials change, and studies reach completion. Where relevant, we’ll link from the Tracker to in-depth HDBuzz articles that explore the science and results in more detail.

We hope this new feature becomes a useful way to stay oriented in a busy and fast-moving research space. We are living in a time with so many clinical trials for HD and now, there’s a clearer way to keep track of when updates are coming.

Explore the HDBuzz Trial Tracker on the right hand side of our home page if you’re navigating on a computer, or at the bottom of our home page if you’re on a mobile device.

Summary

• So many HD trials. So much to keep track of! The new HDBuzz Trial Tracker is a snapshot-style overview of Huntington’s disease clinical trials, showing what updates we should expect from which company, and when. 
• The Trial Tracker helps the HD community keep track of an increasingly busy trial landscape, while HDBuzz articles continue to provide the detailed, plain-language explanations behind the science.