Hope in Full Bloom: Why Your Support Matters Now More Than Ever

Over the past year, HDBuzz has been evolving, growing, and delivering on its mission—bringing clear, accessible, and accurate Huntington’s disease (HD) research news to families and researchers around the world. From major clinical trial updates to scientific breakthroughs, we’ve been at the forefront, translating complex science into clear, understandable insights. But as HD research advances, so must we. Today, we’re launching our Spring Giving Campaign: “Hope in Full Bloom”—an opportunity for our community to come together and ensure that HDBuzz remains the trusted source for HD research news.

A Year of Growth and Impact

It’s been one year since HDBuzz transitioned to new leadership. In that time, we have:

• Doubled article output on critical HD research developments. If you feel like you’ve been seeing more HDBuzz content than ever before, you’re not imagining it! As the pace of HD research has accelerated, we’ve matched it. In past years, HDBuzz was churning out about 2 articles a month, and recently we’ve settled in to publishing about an article a week. But we’re not stopping there! HD researchers keep cranking out amazing science and clinical trial updates are on a roll, so we’re ramping up too! You may have noticed our Monday/Thursday publication schedule in March, which will be our new norm, so prep your inbox for HDBuzz emails twice a week moving forward.

• Expanded our team by bringing in new writers from top research institutions. As our output has grown, so has our writing team, offering readers perspectives from fresh voices within the HD research community. And we’re excited to expand this initiative too! We’re bringing back the HDBuzz Prize for Young Science Writers this summer, so stay tuned.

• Launched new social media channels (Instagram, Bluesky) to reach more people in new ways. The way people read and receive information is evolving, so we’re meeting people where they are—on new social media platforms. This will help us bring you our same great content in a fresh way while reaching a broader audience across multiple platforms to keep the global community up to date on HD research breakthroughs.

• Strengthened our funding model, raising over $23,000 through direct reader donations since October. Thank you! We’re still working toward financial independence and sustainability, but because of loyal readers and supporters, we’re headed there.

Every article, every update, every social media post represents our commitment to free, accurate, and accessible HD research news—because knowledge is power.

Why This Matters Now

2025 is shaping up to be a pivotal year in HD research!

“Our goal is to raise $30,000 by May 27 to keep HDBuzz thriving, expand our reporting, and prepare for the biggest HD research updates of the year.”

Major clinical trials are reaching key milestones. The second quarter of this year will bring long-awaited data from multiple trials testing potential disease-modifying treatments. This includes both uniQure and PTC Therapeutics, who are both expected to report critical results by the end of June. Families, advocates, and researchers around the world will be looking for trusted, clear, and independent analysis—the kind of reporting that HDBuzz specializes in.

New discoveries are transforming the field. Researchers are learning more than ever about HD biology, from biomarkers that could get us to preventative trials to the reason behind why HD symptoms takes so long to show up. HDBuzz ensures these breakthroughs are translated into plain language, making cutting-edge science accessible to everyone.

The global HD community depends on accurate, unbiased information. With so much at stake, it’s critical that families have a source they can trust—one that cuts through jargon and provides clear, relevant updates.

The Challenge: Keeping HDBuzz Strong

While our impact is growing, so are the challenges of sustaining independent science journalism.

HDBuzz is funded entirely by donations from HD community organizations and readers. Unlike traditional media, we don’t sell ads or operate behind a paywall. We believe research news should be free to everyone, no matter their location or financial situation.

Importantly, HDBuzz has never accepted funding or support from drug companies. We love drug companies—we’re hoping they help us cure HD! But taking money from any organization dedicated to a particular therapy could give the impression of bias in our reporting, which we diligently aim to avoid.

Our goal is to raise $30,000 by May 27 to keep HDBuzz thriving, expand our reporting, and prepare for the biggest HD research updates of the year.

Here’s how you can help:

• Make a donation today—whether it’s a one-time gift or a monthly contribution. Every dollar fuels HD research news that remains free for all.

• Share our campaign with your network—on social media, in HD support groups, or with friends and family.

• Stay engaged—follow our updates, comment on our posts, and help amplify trusted HD research news.

• Follow us on social media and spread the word—like, share, and invite your friends and family to follow us too. We’re on Facebook, Instagram, LinkedIn, and Bluesky. Every new follower helps expand awareness and support for HD research.

What Your Support Makes Possible

• $10/month helps us translate articles into multiple languages, reaching HD families worldwide.

“If just 5% of our readers gave $20/month, we would be independently sustainable by the end of the year.”

• $50 supports real-time reporting from major HD research conferences.

• $200 funds an in-depth, expert-written article breaking down the latest scientific data.

If just 5% of our readers gave $20/month, we would be independently sustainable by the end of the year.

Join Us—Hope in Full Bloom for HD Research

Now is the time. With major trial results on the horizon, groundbreaking research happening now, and a growing community that relies on our reporting, we need your support more than ever.

Every donation, every share, and every engagement strengthens our ability to deliver trusted, timely, and independent HD research news.

Donate today to nurture knowledge, grow hope, and advance understanding of HD research.

Thank you for letting us be a part of your journey.