human
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Studying Stutters: What 900,000 genomes teach us about growing DNA repeats
7 min read
The CAG repeat that causes HD has a tendency to grow with age. New research on over 900,000 people uncovers parallel patterns and finds CAG growth can happen in many other parts of the genome.
By AJ Keefe -
Highlighting Mental Health Disparities in Indigenous Communities Affected by Huntington’s Disease
11 min read
Unique research highlights an overlooked mental health disparity among Indigenous North American people with HD – and the need for care grounded in trust, community partnership, and cultural understanding.
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Food for Thought: The Importance of Nutrition in Huntingtonās Disease
8 min read
What if nutrition is one of the warning lights we should be checking earlier in Huntingtonās disease? New research suggests simple nutrition measures may help identify when people with HD need extra support.
By Eva Woods -
Could Brain Waves Help Track Huntington’s Disease?
7 min read
A review of 23 studies found that EEG changes were linked to disease progression and clinical measures in HD. While more research is needed, EEG holds potential to become a simple, non-invasive biomarker for monitoring HD over time.
By Dr Laura Ohl -
Keeping an Eye on HD: Can Visual Thinking Skills Help Track Disease Progression?
7 min read
What if Huntingtonās disease changes how we āseeā the world before we even notice symptoms? New research suggests visual thinking skills may help track HD progression over time.
By Eva Woods -
Putting it in print: a clinical trial trying to rein in runaway pruning
9 min read
Four years after announcing positive results in their trial of ANX005 (tanruprubart) for HD, Annexon has formally published the results. Itās safe, hits its target, and may have helped some participants ā so whatās the holdup?
By Dr Leora Fox -
Mirror, Mirror on the Wall: When Self-Awareness Shifts in Huntingtonās Disease
6 min read
A new study suggests that reduced awareness of symptoms, known as anosognosia, may appear even in the earliest stages of HD. The findings highlight that understanding symptom progression requires more than one perspective.
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More Than Just Food: The Hidden Challenges of Eating with Huntingtonās Disease
8 min read
People with Huntingtonās disease commonly experience unintended weight loss. A recent article identified the challenges around HDās impact on eating and weight maintenance, and explored how families and professionals navigate them.
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Dancing With a Stranger: Understanding Apathy in Huntingtonās Disease Through Caregivers
5 min read
Apathy in HD isnāt just ānot caring.ā It can affect relationships, routines, and emotional connection. A small study of caregivers reveals the heavy toll of apathy and the value of safe spaces to share experiences.
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Artificial Intelligence enters the HD space as a diagnostic tool
8 min read
From predicting symptom onset to tracking movement changes via smartwatch, artificial intelligence tools are being used in research. Here’s where we are, and why Huntingtonās disease is a strong candidate for these approaches.