community
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A Guest Perspective for Gratitude Day: Why Huntington’s Disease May Be Neuroscience’s Best Investment
⏱️ 6 min read | Today, on Gratitude Day, we share a guest piece from HD researcher Roy Maimon that Huntington’s disease is neuroscience’s best investment, not just for its scientific clarity, but for the remarkable community built around it.
By Roy Maimon -
The Girl at the End of the World: A Gratitude Day Reflection on the Place that Built Our Science
⏱️ 9 min read | This Gratitude Day, March 23rd, we celebrate the extraordinary partnership between HD families, scientists, and caregivers, and reflect on the place that built the science on which we all stand.
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Huntington’s Disease Community Advocacy Helps Land Critical FDA Meeting for AMT-130
⏱️5 min read |The Huntington’s disease community’s unprecedented mobilization helped secure a high-priority FDA meeting to discuss the path forward for AMT-130.
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Keeping up with HD research just got easier: Introducing the HDBuzz Trial Tracker
⏱️6 min read | Ever wonder when to expect the next update from a clinical trial for Huntington’s disease? The HDBuzz Trial Tracker puts future updates for HD trials on a clear timeline, with deeper explanations in our articles when you want them.
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UniQure Receives FDA Meeting Minutes on AMT-130 While Community Support Remains Strong
UniQure received FDA’s meeting minutes on AMT-130. While there were no new updates, the community’s response has been powerful, with 41K+ petition signatures & unified advocacy from major HD orgs.
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Carried from Childhood: Childhood Experiences and Adult Mental Health in Families with Huntington’s Disease
Some childhood experiences stay with us, quietly shaping how we feel as adults. For those raised in families with Huntington’s disease, this new study helps make sense of those feelings, and reminds us that healing is possible.
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Huntington’s Disease Heroes: A Gratitude Day Feature on Factor-H
In honor of #HDGratitudeDay, happening today, March 23, 2025, HDBuzz interviewed Dr. Ignacio Muñoz-Sanjuán, President and Founder of Factor-H—a nonprofit dedicated to supporting Huntington’s disease families in Latin America.
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This Gratitude Day, HDBuzz Is Grateful For The Partnership Between HD Families And Scientists
This #HDGratitudeDay, we’re going beyond science & getting to the heart of what drives this community—the people. Learn how Factor-H is bringing hope & humanity to the most vulnerable within the HD community, and join us in amplifying their message.
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Community voices power change through research surveys
HDYO released data from recent surveys of the global HD community. Learn more about the findings and how surveys can help shape the future of HD care and support.
By Dr Leora Fox -
2024: Year in Review
As we begin 2025, we look back on all of the Huntington’s disease research news and progress the field has made in the last 12 months.