care
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Canāt Get You Out of My Head: The Huntingtonās Disease Symptom Thatās More Than Just Repetition
5 min read
Getting āstuckā on a thought, action, or conversation can be a symptom of HDānot stubbornness. New research suggests perseveration may begin earlier than previously thought and highlights the value of caregiver perspectives.
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Food for Thought: The Importance of Nutrition in Huntingtonās Disease
8 min read
What if nutrition is one of the warning lights we should be checking earlier in Huntingtonās disease? New research suggests simple nutrition measures may help identify when people with HD need extra support.
By Eva Woods -
Mirror, Mirror on the Wall: When Self-Awareness Shifts in Huntingtonās Disease
6 min read
A new study suggests that reduced awareness of symptoms, known as anosognosia, may appear even in the earliest stages of HD. The findings highlight that understanding symptom progression requires more than one perspective.
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More Than Just Food: The Hidden Challenges of Eating with Huntingtonās Disease
8 min read
People with Huntingtonās disease commonly experience unintended weight loss. A recent article identified the challenges around HDās impact on eating and weight maintenance, and explored how families and professionals navigate them.
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The Great Care Conundrum: What āGoodā Care Looks Like in Huntingtonās Disease
8 min read
What does āgood careā look like in Huntingtonās Disease? A new Dutch study asked familial and professional caregivers, and uncovered how differently itās experienced in practice.
By Eva Woods -
Dancing With a Stranger: Understanding Apathy in Huntingtonās Disease Through Caregivers
5 min read
Apathy in HD isnāt just ānot caring.ā It can affect relationships, routines, and emotional connection. A small study of caregivers reveals the heavy toll of apathy and the value of safe spaces to share experiences.
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Artificial Intelligence enters the HD space as a diagnostic tool
8 min read
From predicting symptom onset to tracking movement changes via smartwatch, artificial intelligence tools are being used in research. Here’s where we are, and why Huntingtonās disease is a strong candidate for these approaches.
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Between Care, Genes, and Systems: Navigating Huntingtonās Disease as a Caregiver
6 min read
A small study based in Ireland asked a simple question: what does caring for someone with Huntingtonās disease feel like? The answers point to isolation, stigma, and major gaps in healthcare support for many of the respondents.
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Two Heads Are Better Than One: Combined Physical and Music Therapy for Late-Stage Huntingtonās Disease
6 min read
A new study looking into combined music and physical therapy shows that simple rhythmic cues work better than complex music or instructions, helping to improve movement control and reducing chorea.
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Better Sleep, Better Function: New Study Links Sleep Quality to Clinical Outcomes in Huntington’s Disease
6 min read
Most people with HD report sleep problems, & new research suggests sleep quality is linked to many aspects of living with the disease. Wearables tracked people with HD for a year & revealed better sleep & strength training might help.