care
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Mirror, Mirror on the Wall: When Self-Awareness Shifts in Huntingtonās Disease
ā±ļø6 min read | A new study suggests that reduced awareness of symptoms, known as anosognosia, may appear even in the earliest stages of HD. The findings highlight that understanding symptom progression requires more than one perspective.
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More Than Just Food: The Hidden Challenges of Eating with Huntingtonās Disease
ā±ļø8 min read | People with Huntingtonās disease commonly experience unintended weight loss. A recent article identified the challenges around HDās impact on eating and weight maintenance, and explored how families and professionals navigate them.
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The Great Care Conundrum: What āGoodā Care Looks Like in Huntingtonās Disease
ā±ļø8 min read | What does āgood careā look like in Huntingtonās Disease? A new Dutch study asked familial and professional caregivers, and uncovered how differently itās experienced in practice.
By Eva Woods -
Dancing With a Stranger: Understanding Apathy in Huntingtonās Disease Through Caregivers
ā±ļø5 min read | Apathy in HD isnāt just ānot caring.ā It can affect relationships, routines, and emotional connection. A small study of caregivers reveals the heavy toll of apathy and the value of safe spaces to share experiences.
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Artificial Intelligence enters the HD space as a diagnostic tool
ā±ļø9 min read | From predicting symptom onset to tracking movement changes via smartwatch, artificial intelligence tools are being used in research. Here’s where we are, and why Huntingtonās disease is a strong candidate for these approaches.
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Between Care, Genes, and Systems: Navigating Huntingtonās Disease as a Caregiver
A small study based in Ireland asked a simple question: what does caring for someone with Huntingtonās disease feel like? The answers point to isolation, stigma, and major gaps in healthcare support for many of the respondents.
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Two Heads Are Better Than One: Combined Physical and Music Therapy for Late-Stage Huntingtonās Disease
A new study looking into combined music and physical therapy shows that simple rhythmic cues work better than complex music or instructions, helping to improve movement control and reducing chorea.
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Better Sleep, Better Function: New Study Links Sleep Quality to Clinical Outcomes in Huntington’s Disease
ā±ļø6 min read | Most people with HD report sleep problems, & new research suggests sleep quality is linked to many aspects of living with the disease. Wearables tracked people with HD for a year & revealed better sleep & strength training might help.
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Vaccines and Neurodegeneration: Lessons for Huntingtonās Disease?
ā±ļø5 min read | Research suggests vaccines may reduce dementia risk by 20%. Infections cause inflammation and toxic byproducts that mitochondria normally clear. In HD, where mitochondria are impaired, vaccination is especially crucial.
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āāAn Old Drug, New Tricks: Sertraline May Lighten the Load in HD by Targeting Protein Production
New research suggests the antidepressant sertraline might have improved function in people with Huntingtonās disease, prevented motor problems in mice, and stabilized protein production. Could this common drug be impacting HD from multiple angles?