care
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Artificial Intelligence enters the HD space as a diagnostic tool
⏱️9 min read | From predicting symptom onset to tracking movement changes via smartwatch, artificial intelligence tools are being used in research. Here’s where we are, and why Huntington’s disease is a strong candidate for these approaches.
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Between Care, Genes, and Systems: Navigating Huntington’s Disease as a Caregiver
A small study based in Ireland asked a simple question: what does caring for someone with Huntington’s disease feel like? The answers point to isolation, stigma, and major gaps in healthcare support for many of the respondents.
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Two Heads Are Better Than One: Combined Physical and Music Therapy for Late-Stage Huntington’s Disease
A new study looking into combined music and physical therapy shows that simple rhythmic cues work better than complex music or instructions, helping to improve movement control and reducing chorea.
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Better Sleep, Better Function: New Study Links Sleep Quality to Clinical Outcomes in Huntington’s Disease
⏱️6 min read | Most people with HD report sleep problems, & new research suggests sleep quality is linked to many aspects of living with the disease. Wearables tracked people with HD for a year & revealed better sleep & strength training might help.
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Vaccines and Neurodegeneration: Lessons for Huntington’s Disease?
⏱️5 min read | Research suggests vaccines may reduce dementia risk by 20%. Infections cause inflammation and toxic byproducts that mitochondria normally clear. In HD, where mitochondria are impaired, vaccination is especially crucial.
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An Old Drug, New Tricks: Sertraline May Lighten the Load in HD by Targeting Protein Production
New research suggests the antidepressant sertraline might have improved function in people with Huntington’s disease, prevented motor problems in mice, and stabilized protein production. Could this common drug be impacting HD from multiple angles?
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Carried from Childhood: Childhood Experiences and Adult Mental Health in Families with Huntington’s Disease
Some childhood experiences stay with us, quietly shaping how we feel as adults. For those raised in families with Huntington’s disease, this new study helps make sense of those feelings, and reminds us that healing is possible.
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Mind Your Mouth: Huntington’s Disease and Oral Health
A recently published review discusses the challenges of dental care for people with HD, and the ways that informed dentists and medical teams can help to manage oral healthcare throughout the HD journey.
By Dr Leora Fox -
Unlocking the Mind’s Eye: How Huntington’s Disease Changes How We See and Process the World
For many with Huntington’s disease, recognising faces, navigating familiar places, or reading can be difficult. Scientists studied how and when HD affects how the brain processes what we see—crucial research to improve support for people with HD.
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Stars in the Sky: Psychosis in Huntington’s Disease
New research shines a light on an often-overlooked side of Huntington’s disease—psychosis. Understanding the impact of psychosis on daily life and progression of other HD symptoms could be key to providing better care and support.