care
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Mind Your Mouth: Huntingtonās Disease and Oral Health
A recently published review discusses the challenges of dental care for people with HD, and the ways that informed dentists and medical teams can help to manage oral healthcare throughout the HD journey.
By Dr Leora Fox -
Unlocking the Mindās Eye: How Huntingtonās Disease Changes How We See and Process the World
For many with Huntingtonās disease, recognising faces, navigating familiar places, or reading can be difficult. Scientists studied how and when HD affects how the brain processes what we seeācrucial research to improve support for people with HD.
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Stars in the Sky: Psychosis in Huntingtonās Disease
New research shines a light on an often-overlooked side of Huntingtonās diseaseāpsychosis. Understanding the impact of psychosis on daily life and progression of other HD symptoms could be key to providing better care and support.
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Self-determination on the HD journey: the role of Advanced Care Planning
Advanced Care Planning is a tool that can allow people living with Huntingtonās disease to compassionately engage with loved ones about their future care, taking thoughtful steps at their own pace while theyāre able, to ensure their wishes are met.
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2024 HDBuzz Prize: Thinking beyond therapies – itās time to consider racial disparity in HD care and research
We're proud to announce Dr. Zanna Voysey as a 2024 HDBuzz Prize winner! She shares a new study that details racial disparities in HD care and research. Addressing this could improve the lives of people living with HD in the here-and-now.
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14 changes for a healthier brain
In 2019, there were ~57 million people living with dementia. By 2050, that number is expected to climb to 153 million. Changes in the 14 factors highlighted here can improve brain health and be applied to Huntingtonās disease.
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What does COVID-19 mean for Huntingtonās disease families and HD research?
COVID-19 update: what does it mean for HD families, how does it impact HD research, and how has it changed the way science works?
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Closing the care gap: new guidelines for HD care
Closing the care gap: new guidelines to help every Huntington's disease patient get great care