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July 2025: This Month in Huntington’s Disease Research
Latest News
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The Huntington’s Disease Youth Organization’s World Congress: Supporting Young People Affected by HD
Young people impacted by Huntington’s disease don’t have to face it alone. @HDYO provides support, education, and community to empower those up to age 35. Learn more about their mission and the recent HDYO International Young Adult Congress!
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Listening for Whispers: How a Tiny Protein Could Transform HD Research
A 14-year study tracking NfL levels in people with the HD gene shows this tiny protein can signal disease progression many years before symptoms start. The longest follow-up study yet adds weight to NfL as a powerful tool for HD research.
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Wake up call: Sleep is impacted before Huntington’s disease symptoms appear
For Sleep Awareness Week (March 9-15), HDBuzz is giving a wake up call to sleep disturbances in Huntington’s disease. New research suggests sleep changes start early, before other symptoms appear—but there are steps you can take to catch better Z's!
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Huntington's Disease Therapeutics Conference 2025 – Day 3
HDBuzz reported live updates on Bluesky from the 2025 HD Therapeutics Conference. Read on for coverage of Day 3. #CHDI2025
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Huntington's Disease Therapeutics Conference 2025 – Day 2
HDBuzz reported live updates on Bluesky from the 2025 HD Therapeutics Conference. Read on for coverage of Day 2. #CHDI2025
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Huntington's Disease Therapeutics Conference 2025 – Day 1
HDBuzz reported live updates on Bluesky from the 2025 HD Therapeutics Conference. Read on for coverage of Day 1. #CHDI2025
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Brain Gym: Staying Mentally Active May Slow Huntington’s Disease
New research suggests that cognitive engagement – keeping your brain busy with activities like reading, puzzles, or learning new skills – could help protect the brain, possibly slowing progression of symptoms of Huntington’s disease.
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A New Key to HD? How TDP43 Might Spoil The Show
Like a movie editor removing bloopers, our cells also edit their protein machines to make films worth watching. New research finds the cell’s movie editor is distracted in Huntington’s disease.
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Steadying genetic stumble could help slow Huntington's disease
Using CRISPR technology, scientists uncovered genes that control C-A-G genetic stumbles in Huntington's disease
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Community voices power change through research surveys
HDYO released data from recent surveys of the global HD community. Learn more about the findings and how surveys can help shape the future of HD care and support.