Latest News
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Huntington’s Disease Heroes: A Gratitude Day Feature on Factor-H
In honor of #HDGratitudeDay, happening today, March 23, 2025, HDBuzz interviewed Dr. Ignacio Muñoz-Sanjuán, President and Founder of Factor-H—a nonprofit dedicated to supporting Huntington’s disease families in Latin America.
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This Gratitude Day, HDBuzz Is Grateful For The Partnership Between HD Families And Scientists
This #HDGratitudeDay, we’re going beyond science & getting to the heart of what drives this community—the people. Learn how Factor-H is bringing hope & humanity to the most vulnerable within the HD community, and join us in amplifying their message.
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The Huntington’s Disease Youth Organization’s World Congress: Supporting Young People Affected by HD
Young people impacted by Huntington’s disease don’t have to face it alone. @HDYO provides support, education, and community to empower those up to age 35. Learn more about their mission and the recent HDYO International Young Adult Congress!
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Listening for Whispers: How a Tiny Protein Could Transform HD Research
A 14-year study tracking NfL levels in people with the HD gene shows this tiny protein can signal disease progression many years before symptoms start. The longest follow-up study yet adds weight to NfL as a powerful tool for HD research.
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Wake up call: Sleep is impacted before Huntington’s disease symptoms appear
For Sleep Awareness Week (March 9-15), HDBuzz is giving a wake up call to sleep disturbances in Huntington’s disease. New research suggests sleep changes start early, before other symptoms appear—but there are steps you can take to catch better Z's!
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Huntington's Disease Therapeutics Conference 2025 – Day 3
HDBuzz reported live updates on Bluesky from the 2025 HD Therapeutics Conference. Read on for coverage of Day 3. #CHDI2025
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Huntington's Disease Therapeutics Conference 2025 – Day 2
HDBuzz reported live updates on Bluesky from the 2025 HD Therapeutics Conference. Read on for coverage of Day 2. #CHDI2025
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Huntington's Disease Therapeutics Conference 2025 – Day 1
HDBuzz reported live updates on Bluesky from the 2025 HD Therapeutics Conference. Read on for coverage of Day 1. #CHDI2025
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Brain Gym: Staying Mentally Active May Slow Huntington’s Disease
New research suggests that cognitive engagement – keeping your brain busy with activities like reading, puzzles, or learning new skills – could help protect the brain, possibly slowing progression of symptoms of Huntington’s disease.
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A New Key to HD? How TDP43 Might Spoil The Show
Like a movie editor removing bloopers, our cells also edit their protein machines to make films worth watching. New research finds the cell’s movie editor is distracted in Huntington’s disease.