Huntington’s disease research news. In plain language. Written by scientists. For the global HD community.

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Articles with the topic: communication

The 2013 HDBuzz Prize for Young Science Writers

The 2013 HDBuzz Prize for Young Science Writers

Dr Ed Wild on September 02, 2013

We’re pleased to announce the 2013 HDBuzz Prize, an opportunity for early-career Huntington’s disease researchers to get involved in communicating HD science to the global community, see their work published here and win US$500 in Amazon vouchers!

Is access to predictive genetic testing for Huntington's disease a problem?

Is access to predictive genetic testing for Huntington's disease a problem?

Deepti Babu on April 23, 2013

Is access to 'predictive' genetic testing for Huntington's disease a problem? Research from University of British Columbia researchers suggests that it is, at least in Canada. We explore the problem and possible solutions.

The University of New Orleans has NOT discovered a cure for Huntington's disease

The University of New Orleans has NOT discovered a cure for Huntington's disease

Dr Ed Wild on January 28, 2013

A recent press release from the University of New Orleans (UNO) claims its researchers have discovered a "way to delay symptoms of deadly Huntington's disease". Music to the ears of HD family members everywhere. But does the science live up to the hype? The short answer, sadly, is no.

The HDBuzz Prize for young science writers

The HDBuzz Prize for young science writers

Dr Ed Wild on May 03, 2012

We're pleased to announce the HDBuzz prize, an opportunity for early-career Huntington's disease researchers to get involved in communicating HD science to the global community, see their work published here and win real human money!

Closing the care gap: new guidelines for HD care

Closing the care gap: new guidelines for HD care

Dr Ed Wild on April 17, 2012

Huntington's disease may be incurable - but it's far from untreatable. But the care patients receive from professionals can be inconsistent. Now, a series of recently published internationally-agreed guidelines will help 'level up' everyone's care to the best standards.

HDYO! Huntington's Disease Youth Organization goes live

HDYO! Huntington's Disease Youth Organization goes live

Dr Ed Wild on February 10, 2012

A bright day dawns for young people affected by Huntington's disease as HDYO, the Huntington's Disease Youth Organization, is launched. Created for young people, by young people, HDYO represents nothing less than a generation of people affected by HD, standing united to fight the disease together.

2011 - a year in Huntington's disease research

2011 - a year in Huntington's disease research

Dr Ed Wild on December 31, 2011

2011 was a year of big events, and the world of Huntington's disease was no exception. From the launch of HDBuzz and the growth of the global HD community to intriguing progress in basic science and a certainty that effective treatments are closer than ever. Our 2011 review looks back - and forward.

Chinese Huntington’s Disease Network launched

Chinese Huntington’s Disease Network launched

Dr Jeff Carroll on December 21, 2011

Huntington’s disease is relatively rare. In western countries, estimates of the number of people with symptoms of HD are about 1 in 20,000 people. It's been suggested that HD is even rarer in China, but of course China is a huge place. HDBuzz attended the launch of the new Chinese HD Network to learn whether this is true, and what a Chinese HD Network could mean for HD patients around the world.

HD World Congress 2011: a retrospective

HD World Congress 2011: a retrospective

Dr Jeff Carroll on October 24, 2011

A growing, more unified worldwide HD community and a sense that we're ready for a new era of Huntington's disease clinical trials were two prominent messages at the recent World Congress on Huntington's disease in Melbourne. Now the dust has settled, HDBuzz reflects on the meeting's major themes.